Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children’s Palliative Care Outcome Scale (C-POS:UK)

Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children’s Palliative Care Outcome Scale (C-POS:UK)

Background: Development of a paediatric palliative care child and family centred outcome measure is a priority for health care professionals, researchers and advocates. It is methodologically challenging to develop a measure relevant for such a heterogenous population with complex needs. Involving c...

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Main Authors: Debbie Braybrook, Lucy Coombes, Daney Harðardóttir, Hannah M. Scott, Katherine Bristowe, Clare Ellis-Smith, Anna Roach, Christina Ramsenthaler, Myra Bluebond-Langner, Julia Downing, Fliss E. M. Murtagh, Lorna K. Fraser, Richard Harding
Format: Article
Language:English
Published: SAGE Publishing 2024-12-01
Series:Palliative Care and Social Practice
Online Access:https://doi.org/10.1177/26323524241303537
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