Understanding parental hurdles in accessing strabismus treatment

Purpose: To explore the parental factors that impede early intervention for strabismus and thus identify strategies for improving access to specialized care. Methods: This hospital-based cross-sectional study included 110 parents of children under 19 years with strabismus receiving treatment at the...

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Main Authors: Omna Chawla, Anupam Singh, Himani Pal, Sanjeev Kumar Mittal, Srishti Sharma, Mittali Khurana, Pooja Kumari, Barun Kumar
Format: Article
Language:English
Published: Elsevier 2024-11-01
Series:Advances in Ophthalmology Practice and Research
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Online Access:http://www.sciencedirect.com/science/article/pii/S2667376224000520
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author Omna Chawla
Anupam Singh
Himani Pal
Sanjeev Kumar Mittal
Srishti Sharma
Mittali Khurana
Pooja Kumari
Barun Kumar
author_facet Omna Chawla
Anupam Singh
Himani Pal
Sanjeev Kumar Mittal
Srishti Sharma
Mittali Khurana
Pooja Kumari
Barun Kumar
author_sort Omna Chawla
collection DOAJ
description Purpose: To explore the parental factors that impede early intervention for strabismus and thus identify strategies for improving access to specialized care. Methods: This hospital-based cross-sectional study included 110 parents of children under 19 years with strabismus receiving treatment at the squint clinic of a tertiary health care center in north India. A pre-validated survey questionnaire was administered to the participants, that had a section about the socio-demographics of the participants, another section addressed the parental knowledge about strabismus about diagnosis, and the need for an eye examination. It also sought information about referral source, the felt need for squint examination, and reasons for not seeking treatment. Results: A total of 110 parents/guardians of strabismus patients (59 exotropes and 51 esotropes) were interviewed using a survey questionnaire. Parents themselves identified 80% of cases, and a substantial link (P ​< ​0.0001) was found between the education status of parents and the age of identification of strabismus. Fear of surgical outcomes (41.79%) was a significant barrier to timely surgery with a higher percentage of parents expressing fear of surgical outcomes (P ​= ​0.025). The cost of surgery (34.33%) and the non-availability of facilities (23.88%) also delayed the intervention. Conclusions: It is essential to educate parents about the importance of strabismus therapy at an appropriate time, stressing its reconstructive rather than merely cosmetic nature, as there are notable gaps in their knowledge. Also, we need to do away with the fear of surgical outcomes of surgical interventions for strabismus.
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spelling doaj-art-73680ecf1e9e4f32b9574fa0ab2fe9ff2024-12-01T05:08:54ZengElsevierAdvances in Ophthalmology Practice and Research2667-37622024-11-0144189193Understanding parental hurdles in accessing strabismus treatmentOmna Chawla0Anupam Singh1Himani Pal2Sanjeev Kumar Mittal3Srishti Sharma4Mittali Khurana5Pooja Kumari6Barun Kumar7Department of Physiology, Government Doon Medical College, Dehradun, Uttarakhand, IndiaDepartment of Ophthalmology, AIIMS Rishikesh, Uttarakhand, India; Corresponding author. Ophthalmology Department, AIIMS Rishikesh, Uttarakhand, 249203, India.Department of Ophthalmology, AIIMS Rishikesh, Uttarakhand, IndiaDepartment of Ophthalmology, AIIMS Rishikesh, Uttarakhand, IndiaDepartment of Ophthalmology, AIIMS Rishikesh, Uttarakhand, IndiaDepartment of Ophthalmology, AIIMS Rishikesh, Uttarakhand, IndiaDepartment of Ophthalmology, AIIMS Rishikesh, Uttarakhand, IndiaDepartment of Cardiology, AIIMS Rishikesh, Uttarakhand, IndiaPurpose: To explore the parental factors that impede early intervention for strabismus and thus identify strategies for improving access to specialized care. Methods: This hospital-based cross-sectional study included 110 parents of children under 19 years with strabismus receiving treatment at the squint clinic of a tertiary health care center in north India. A pre-validated survey questionnaire was administered to the participants, that had a section about the socio-demographics of the participants, another section addressed the parental knowledge about strabismus about diagnosis, and the need for an eye examination. It also sought information about referral source, the felt need for squint examination, and reasons for not seeking treatment. Results: A total of 110 parents/guardians of strabismus patients (59 exotropes and 51 esotropes) were interviewed using a survey questionnaire. Parents themselves identified 80% of cases, and a substantial link (P ​< ​0.0001) was found between the education status of parents and the age of identification of strabismus. Fear of surgical outcomes (41.79%) was a significant barrier to timely surgery with a higher percentage of parents expressing fear of surgical outcomes (P ​= ​0.025). The cost of surgery (34.33%) and the non-availability of facilities (23.88%) also delayed the intervention. Conclusions: It is essential to educate parents about the importance of strabismus therapy at an appropriate time, stressing its reconstructive rather than merely cosmetic nature, as there are notable gaps in their knowledge. Also, we need to do away with the fear of surgical outcomes of surgical interventions for strabismus.http://www.sciencedirect.com/science/article/pii/S2667376224000520ParentalStrabismusHurdlesTreatmentSurvey
spellingShingle Omna Chawla
Anupam Singh
Himani Pal
Sanjeev Kumar Mittal
Srishti Sharma
Mittali Khurana
Pooja Kumari
Barun Kumar
Understanding parental hurdles in accessing strabismus treatment
Advances in Ophthalmology Practice and Research
Parental
Strabismus
Hurdles
Treatment
Survey
title Understanding parental hurdles in accessing strabismus treatment
title_full Understanding parental hurdles in accessing strabismus treatment
title_fullStr Understanding parental hurdles in accessing strabismus treatment
title_full_unstemmed Understanding parental hurdles in accessing strabismus treatment
title_short Understanding parental hurdles in accessing strabismus treatment
title_sort understanding parental hurdles in accessing strabismus treatment
topic Parental
Strabismus
Hurdles
Treatment
Survey
url http://www.sciencedirect.com/science/article/pii/S2667376224000520
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