Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease

Aim To explore preferences, experience and trust in digital health in people living with chronic kidney disease (CKD), and tailor these findings towards solutions that may enhance uptake of digital health services. Methods Mixed methods study, with cross-sectional survey and individual interviews wi...

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Main Authors: Soraia de Camargo Catapan, Monica L Taylor, Paul Scuffham, Anthony C Smith, Jaimon T Kelly
Format: Article
Language:English
Published: SAGE Publishing 2025-01-01
Series:Digital Health
Online Access:https://doi.org/10.1177/20552076241312440
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author Soraia de Camargo Catapan
Monica L Taylor
Paul Scuffham
Anthony C Smith
Jaimon T Kelly
author_facet Soraia de Camargo Catapan
Monica L Taylor
Paul Scuffham
Anthony C Smith
Jaimon T Kelly
author_sort Soraia de Camargo Catapan
collection DOAJ
description Aim To explore preferences, experience and trust in digital health in people living with chronic kidney disease (CKD), and tailor these findings towards solutions that may enhance uptake of digital health services. Methods Mixed methods study, with cross-sectional survey and individual interviews with adults living with CKD attending specialist appointments at an Australian metropolitan hospital. Descriptive statistics and Wilcoxon matched-pairs test were used for survey responses and thematic analysis of interview transcripts, both reported on a theme-by-theme basis provided an overall understanding of trust in digital healthcare. Results Digital health is changing the way health services are provided, and our results demonstrate that despite limited familiarity, participants are open to learn and adapt to existing digital models of care. Limited exposure to technology may undermine trust in digital health, and telehealth can promote improvements in health literacy. Having the choice in healthcare modalities can promote trust, which can arise from trustful relationships with clinicians who demonstrate genuine interest in patient care. Participants expressed more concerns about sharing identity data than health data online and worry about fragmented information among providers. They preferred public health services due to distrust generated by the perceived risk of private sector data commercialisation. Building trust requires increasing awareness of digital health benefits, promoting positive experiences, improving digital literacy and ensuring interoperability and transparency in digital healthcare systems. Conclusion People with CKD want to learn and benefit from digital health. Choice and open disclosure on data management and purpose are paramount to building trust.
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spelling doaj-art-72a4061719b845e68b2c0c51ee45b51a2025-01-09T14:04:04ZengSAGE PublishingDigital Health2055-20762025-01-011110.1177/20552076241312440Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney diseaseSoraia de Camargo Catapan0Monica L Taylor1Paul Scuffham2Anthony C Smith3Jaimon T Kelly4 , , Brisbane, Australia , , Brisbane, Australia , Gold Coast, Australia Centre for Innovative Medical Technology, University of Southern Denmark, Odense, Denmark , , Brisbane, AustraliaAim To explore preferences, experience and trust in digital health in people living with chronic kidney disease (CKD), and tailor these findings towards solutions that may enhance uptake of digital health services. Methods Mixed methods study, with cross-sectional survey and individual interviews with adults living with CKD attending specialist appointments at an Australian metropolitan hospital. Descriptive statistics and Wilcoxon matched-pairs test were used for survey responses and thematic analysis of interview transcripts, both reported on a theme-by-theme basis provided an overall understanding of trust in digital healthcare. Results Digital health is changing the way health services are provided, and our results demonstrate that despite limited familiarity, participants are open to learn and adapt to existing digital models of care. Limited exposure to technology may undermine trust in digital health, and telehealth can promote improvements in health literacy. Having the choice in healthcare modalities can promote trust, which can arise from trustful relationships with clinicians who demonstrate genuine interest in patient care. Participants expressed more concerns about sharing identity data than health data online and worry about fragmented information among providers. They preferred public health services due to distrust generated by the perceived risk of private sector data commercialisation. Building trust requires increasing awareness of digital health benefits, promoting positive experiences, improving digital literacy and ensuring interoperability and transparency in digital healthcare systems. Conclusion People with CKD want to learn and benefit from digital health. Choice and open disclosure on data management and purpose are paramount to building trust.https://doi.org/10.1177/20552076241312440
spellingShingle Soraia de Camargo Catapan
Monica L Taylor
Paul Scuffham
Anthony C Smith
Jaimon T Kelly
Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
Digital Health
title Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
title_full Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
title_fullStr Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
title_full_unstemmed Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
title_short Improving consumer trust in digital health: A mixed methods study involving people living with chronic kidney disease
title_sort improving consumer trust in digital health a mixed methods study involving people living with chronic kidney disease
url https://doi.org/10.1177/20552076241312440
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