‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students
Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying va...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | SSM: Qualitative Research in Health |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2667321524000829 |
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| author | Liesbeth Geuze Samuel Schrevel Paula van Driesten – van Roozen Anne Goossensen |
| author_facet | Liesbeth Geuze Samuel Schrevel Paula van Driesten – van Roozen Anne Goossensen |
| author_sort | Liesbeth Geuze |
| collection | DOAJ |
| description | Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways. Wonder Labs were organised with parents, healthcare professionals, and students involved in Dutch paediatric palliative care. The aim of this study was to develop an understanding of how participants experienced participating in Wonder Labs. We conducted twenty in-depth interviews with Wonder Lab participants and used inductive thematic analysis for data interpretation. Five themes were identified: Slowing down, Appreciating stories, Becoming vulnerable, Opening up and diving in, and Reframing perspectives. Participating in Wonder Labs allowed mothers, healthcare professionals, and students to contribute to deepening experiences and gain an expanded understanding of what is at play in caring for children with life-limiting and life-threatening conditions. Through working in pluralised groups, frames of reference and understandings complemented each other and could change. Participants often adopted a more open attitude towards others involved in care after participating and adapted day-to-day practices. Deliberating within paediatric palliative care on sensitive issues and their underlying personal and professional beliefs and values must be part of working together, without specific care situations being the catalyst. This may foster the mutual understanding needed in searching for quality of life, death, and bereavement. |
| format | Article |
| id | doaj-art-640972c33c344021b6481fdd303414a9 |
| institution | Kabale University |
| issn | 2667-3215 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | SSM: Qualitative Research in Health |
| spelling | doaj-art-640972c33c344021b6481fdd303414a92024-12-13T11:07:36ZengElsevierSSM: Qualitative Research in Health2667-32152024-12-016100473‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and studentsLiesbeth Geuze0Samuel Schrevel1Paula van Driesten – van Roozen2Anne Goossensen3University of Humanistic Studies, Utrecht, the Netherlands; The Hague University of Applied Sciences, The Hague, the Netherlands; Corresponding author. Johanna Westerdijkplein 75, 2521 EN, The Hague, the Netherlands.The Hague University of Applied Sciences, The Hague, the Netherlands; Leiden University Medical Centre, Leiden, the NetherlandsLeven in Beeld, the NetherlandsUniversity of Humanistic Studies, Utrecht, the NetherlandsWithin paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways. Wonder Labs were organised with parents, healthcare professionals, and students involved in Dutch paediatric palliative care. The aim of this study was to develop an understanding of how participants experienced participating in Wonder Labs. We conducted twenty in-depth interviews with Wonder Lab participants and used inductive thematic analysis for data interpretation. Five themes were identified: Slowing down, Appreciating stories, Becoming vulnerable, Opening up and diving in, and Reframing perspectives. Participating in Wonder Labs allowed mothers, healthcare professionals, and students to contribute to deepening experiences and gain an expanded understanding of what is at play in caring for children with life-limiting and life-threatening conditions. Through working in pluralised groups, frames of reference and understandings complemented each other and could change. Participants often adopted a more open attitude towards others involved in care after participating and adapted day-to-day practices. Deliberating within paediatric palliative care on sensitive issues and their underlying personal and professional beliefs and values must be part of working together, without specific care situations being the catalyst. This may foster the mutual understanding needed in searching for quality of life, death, and bereavement.http://www.sciencedirect.com/science/article/pii/S2667321524000829Paediatric palliative careParents' experiencesChild with a life-limiting or life-threatening conditionChild with profound intellectual and multiple disabilitiesWonder LabHumanisation of healthcare policy |
| spellingShingle | Liesbeth Geuze Samuel Schrevel Paula van Driesten – van Roozen Anne Goossensen ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students SSM: Qualitative Research in Health Paediatric palliative care Parents' experiences Child with a life-limiting or life-threatening condition Child with profound intellectual and multiple disabilities Wonder Lab Humanisation of healthcare policy |
| title | ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students |
| title_full | ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students |
| title_fullStr | ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students |
| title_full_unstemmed | ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students |
| title_short | ‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students |
| title_sort | new worlds open up a qualitative study on wonder lab practices in dutch paediatric palliative care with parents healthcare professionals and students |
| topic | Paediatric palliative care Parents' experiences Child with a life-limiting or life-threatening condition Child with profound intellectual and multiple disabilities Wonder Lab Humanisation of healthcare policy |
| url | http://www.sciencedirect.com/science/article/pii/S2667321524000829 |
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