Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens
Abstract Introduction Sharing patient health information and biospecimens can improve health outcomes and accelerate breakthroughs in medical research. But patients generally lack understanding of how their clinical data and biospecimens are used or commercialized for research. In this mixed methods...
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Main Authors: | Kayte Spector‐Bagdady, Kerry A. Ryan, Luyun Chen, Camille Giacobone, Reshma Jagsi, Reema Hamasha, Katherine Hendy, J. Denard Thomas, Jessie M. Milne, Alexandra H. Vinson, Jodyn Platt |
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Format: | Article |
Language: | English |
Published: |
Wiley
2025-01-01
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Series: | Learning Health Systems |
Subjects: | |
Online Access: | https://doi.org/10.1002/lrh2.10450 |
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