Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study

Background Understanding the place of death for individuals with mental and behavioural disorders (MBDs) is essential for identifying disparities in healthcare access and outcomes, as well as addressing broader health inequities within this population. Aims To examine the place of death among indiv...

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Main Authors: Maja Magdalena Olsson, Christopher Holmberg, Cecilia Larsdotter, Stina Nyblom, Joakim Öhlén
Format: Article
Language:English
Published: Cambridge University Press 2025-01-01
Series:BJPsych Open
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Online Access:https://www.cambridge.org/core/product/identifier/S2056472424008214/type/journal_article
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author Maja Magdalena Olsson
Christopher Holmberg
Cecilia Larsdotter
Stina Nyblom
Joakim Öhlén
author_facet Maja Magdalena Olsson
Christopher Holmberg
Cecilia Larsdotter
Stina Nyblom
Joakim Öhlén
author_sort Maja Magdalena Olsson
collection DOAJ
description Background Understanding the place of death for individuals with mental and behavioural disorders (MBDs) is essential for identifying disparities in healthcare access and outcomes, as well as addressing broader health inequities within this population. Aims To examine the place of death among individuals in Sweden with the underlying cause of death reported as a MBD and compare variations between diagnostic groups, as well as explore associations between place of death and individual, sociodemographic and clinical factors. Method This population-level analysis used death certificate data (gender, age, underlying cause of death and place of death) recorded between 2013 and 2019 and other national register data. MBD group differences were compared using chi-square tests (χ2) and multinominal logistic regressions explored variations in place of death. Results The final sample consisted of 2875 individuals. Our regression model revealed that individuals with MBDs other than intellectual disabilities were less likely to die in hospitals (odds ratio 0.60–0.134 [95% CI = 0.014–0.651]) or care homes (odds ratio 0.11–0.97 [95% CI = 0.003–0.355]) than at home. Substance use disorders were the most common underlying cause of death (61.3%). This group consisted predominantly of men (78.8%, χ2, P < 0.001), and tended to be younger (χ2, P < 0.001). Conclusions Individuals with intellectual and developmental disabilities are more likely to die in hospitals or care homes than at home. Those with MBDs, particularly substance use disorders, face a high risk of premature death, highlighting gaps in healthcare and palliative care provision for these populations.
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spelling doaj-art-4bcebc1f3f3947248a0a93203cd86ba72025-01-16T21:47:33ZengCambridge University PressBJPsych Open2056-47242025-01-011110.1192/bjo.2024.821Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register studyMaja Magdalena Olsson0https://orcid.org/0000-0003-2228-5134Christopher Holmberg1https://orcid.org/0000-0002-6493-3817Cecilia Larsdotter2https://orcid.org/0000-0003-3660-6306Stina Nyblom3https://orcid.org/0000-0002-4998-0324Joakim Öhlén4https://orcid.org/0000-0003-2429-8705Department of Nursing Science, Sophiahemmet University, Stockholm, SwedenInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden Department of Psychotic Disorders, Sahlgrenska University Hospital, Gothenburg, SwedenDepartment of Nursing Science, Sophiahemmet University, Stockholm, SwedenInstitute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; and Palliative Centre, Sahlgrenska University Hospital, Gothenburg, SwedenInstitute of Health and Care Sciences, and Centre for Person-centred Care (GPCC) Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden Palliative Centre, Sahlgrenska University Hospital, Gothenburg, SwedenBackground Understanding the place of death for individuals with mental and behavioural disorders (MBDs) is essential for identifying disparities in healthcare access and outcomes, as well as addressing broader health inequities within this population. Aims To examine the place of death among individuals in Sweden with the underlying cause of death reported as a MBD and compare variations between diagnostic groups, as well as explore associations between place of death and individual, sociodemographic and clinical factors. Method This population-level analysis used death certificate data (gender, age, underlying cause of death and place of death) recorded between 2013 and 2019 and other national register data. MBD group differences were compared using chi-square tests (χ2) and multinominal logistic regressions explored variations in place of death. Results The final sample consisted of 2875 individuals. Our regression model revealed that individuals with MBDs other than intellectual disabilities were less likely to die in hospitals (odds ratio 0.60–0.134 [95% CI = 0.014–0.651]) or care homes (odds ratio 0.11–0.97 [95% CI = 0.003–0.355]) than at home. Substance use disorders were the most common underlying cause of death (61.3%). This group consisted predominantly of men (78.8%, χ2, P < 0.001), and tended to be younger (χ2, P < 0.001). Conclusions Individuals with intellectual and developmental disabilities are more likely to die in hospitals or care homes than at home. Those with MBDs, particularly substance use disorders, face a high risk of premature death, highlighting gaps in healthcare and palliative care provision for these populations. https://www.cambridge.org/core/product/identifier/S2056472424008214/type/journal_articleMental and behavioural diseasessevere mental illnessplace of death
spellingShingle Maja Magdalena Olsson
Christopher Holmberg
Cecilia Larsdotter
Stina Nyblom
Joakim Öhlén
Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
BJPsych Open
Mental and behavioural diseases
severe mental illness
place of death
title Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
title_full Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
title_fullStr Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
title_full_unstemmed Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
title_short Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study
title_sort place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death population level multiple register study
topic Mental and behavioural diseases
severe mental illness
place of death
url https://www.cambridge.org/core/product/identifier/S2056472424008214/type/journal_article
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