The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment
Abstract Introduction The incidence of heart failure (HF) is increasing, largely because populations are both ageing and growing. Most clinical HF treatment trials are conducted on selected cohorts, only a few of which include elderly patients, among whom HF is common. HF registries can include all...
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| Format: | Article |
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Wiley
2024-12-01
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| Series: | ESC Heart Failure |
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| Online Access: | https://doi.org/10.1002/ehf2.15012 |
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| author | Inga Jóna Ingimarsdóttir Johan Sindri Hansen Hekla María Bergmann Hafsteinn Einarsson |
| author_facet | Inga Jóna Ingimarsdóttir Johan Sindri Hansen Hekla María Bergmann Hafsteinn Einarsson |
| author_sort | Inga Jóna Ingimarsdóttir |
| collection | DOAJ |
| description | Abstract Introduction The incidence of heart failure (HF) is increasing, largely because populations are both ageing and growing. Most clinical HF treatment trials are conducted on selected cohorts, only a few of which include elderly patients, among whom HF is common. HF registries can include all HF patients, independent of age or comorbidity profile, and thus reflect reality in healthcare management. Methods The Icelandic Heart Failure Registry (IHFR) was created in the autumn of 2019 and has operated since 1 January 2020. Based on the Swedish Heart Failure Registry (SwedeHF), it quickly acquired several extensions. All patients admitted for HF to the Department of Cardiology (DC) at Landspítali – The National University Hospital of Iceland are included. Several variables are collected, including the aetiology of HF, comorbidities, clinical assessment at admission, blood tests, imaging results, treatment given and medical therapy at discharge. Results During the 3 years from 2020 to 2022, the DC admitted 1890 patients. As some were readmitted during the study period, the true total was 2384 admissions. Because the IHFR 2023 edition includes 327 variables, automation of many of them is imperative for data collection. Conclusion HF is a heterogenous disease with numerous underlying factors. HF management differs among HF phenotypes. A registry can serve as an unbiased indicator of care quality and has the potential to be studied in the future to assess the long‐term effects of HF treatment. A registry like the IHFR, therefore, can impact the treatment of all patients recorded in it, reduce the rate of readmissions and even optimize HF management costs. |
| format | Article |
| id | doaj-art-3e86c037f8b848c3a2e672e4729d9b4f |
| institution | Kabale University |
| issn | 2055-5822 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Wiley |
| record_format | Article |
| series | ESC Heart Failure |
| spelling | doaj-art-3e86c037f8b848c3a2e672e4729d9b4f2024-12-11T01:57:00ZengWileyESC Heart Failure2055-58222024-12-011164081409110.1002/ehf2.15012The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatmentInga Jóna Ingimarsdóttir0Johan Sindri Hansen1Hekla María Bergmann2Hafsteinn Einarsson3Department of Cardiology Landspítali – The National University Hospital of Iceland Reykjavík IcelandDepartment of Health Sciences, Faculty of Medicine University of Iceland Reykjavík IcelandDepartment of Health Sciences, Faculty of Medicine University of Iceland Reykjavík IcelandDepartment of Computer Science University of Iceland Reykjavík IcelandAbstract Introduction The incidence of heart failure (HF) is increasing, largely because populations are both ageing and growing. Most clinical HF treatment trials are conducted on selected cohorts, only a few of which include elderly patients, among whom HF is common. HF registries can include all HF patients, independent of age or comorbidity profile, and thus reflect reality in healthcare management. Methods The Icelandic Heart Failure Registry (IHFR) was created in the autumn of 2019 and has operated since 1 January 2020. Based on the Swedish Heart Failure Registry (SwedeHF), it quickly acquired several extensions. All patients admitted for HF to the Department of Cardiology (DC) at Landspítali – The National University Hospital of Iceland are included. Several variables are collected, including the aetiology of HF, comorbidities, clinical assessment at admission, blood tests, imaging results, treatment given and medical therapy at discharge. Results During the 3 years from 2020 to 2022, the DC admitted 1890 patients. As some were readmitted during the study period, the true total was 2384 admissions. Because the IHFR 2023 edition includes 327 variables, automation of many of them is imperative for data collection. Conclusion HF is a heterogenous disease with numerous underlying factors. HF management differs among HF phenotypes. A registry can serve as an unbiased indicator of care quality and has the potential to be studied in the future to assess the long‐term effects of HF treatment. A registry like the IHFR, therefore, can impact the treatment of all patients recorded in it, reduce the rate of readmissions and even optimize HF management costs.https://doi.org/10.1002/ehf2.15012heart failure outcomesheart failure phenotypesquality of careregistry |
| spellingShingle | Inga Jóna Ingimarsdóttir Johan Sindri Hansen Hekla María Bergmann Hafsteinn Einarsson The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment ESC Heart Failure heart failure outcomes heart failure phenotypes quality of care registry |
| title | The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment |
| title_full | The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment |
| title_fullStr | The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment |
| title_full_unstemmed | The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment |
| title_short | The Icelandic Heart Failure Registry—A nationwide assessment tool for HF care and intervention in HF treatment |
| title_sort | icelandic heart failure registry a nationwide assessment tool for hf care and intervention in hf treatment |
| topic | heart failure outcomes heart failure phenotypes quality of care registry |
| url | https://doi.org/10.1002/ehf2.15012 |
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