“It’s like nursing a butterfly—so delicate, difficult, and unpredictable” – challenges of nurses in caring for patients with epidermolysis bullosa: a qualitative study

Abstract Background Patients with Epidermolysis Bullosa (EB) face extensive and complex challenges, and nurses play a decisive role in providing care for them and educating their families. However, the multifaceted nature of EB care introduces significant challenges for nurses. Objective This study...

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Bibliographic Details
Main Authors: Parivash Karimi, Moloud Radfar, Yaser Moradi
Format: Article
Language:English
Published: BMC 2025-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-025-03925-8
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