Path of a patient with a rare diagnosis: regulatory documents and organization of the process of treatment and diagnosis of an orphan disease in the Russian Federation
The main legislative document of the organization of medical care in the Russian Federation “On fundamental healthcare principles in the Russian Federation” and points related to the rare (orphan) diseases are discussed. The organization of care, rules for managing a federal registry of orphan dis...
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| Main Author: | |
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| Format: | Article |
| Language: | Russian |
| Published: |
ABV-press
2018-01-01
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| Series: | Нервно-мышечные болезни |
| Subjects: | |
| Online Access: | https://nmb.abvpress.ru/jour/article/view/242 |
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