The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults

The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults

Abstract Background The IMPACT Survey explored the humanistic, clinical, and economic burden of osteogenesis imperfecta (OI) on individuals with OI, their families, caregivers, and wider society. Two previous publications report research methodology, initial insights of the survey, and cost of illne...

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Bibliographic Details
Main Authors: Taco van Welzenis, Ingunn Westerheim, Tracy Hart, Lena Lande Wekre, Oliver Semler, Frank Rauch, Laetitia Dewavrin, Ruby Dadzie, Samantha Prince, Cathleen Raggio
Format: Article
Language:English
Published: BMC 2024-11-01
Series:BMC Public Health
Subjects:
Osteogenesis imperfecta
Patient-reported outcomes
Survey
Burden of disease
Fractures
Humanistic burden
Online Access:https://doi.org/10.1186/s12889-024-20555-0
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