Access to primary healthcare services among adults with disabilities in Brazil

ABSTRACT OBJECTIVE To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare. METHODS In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. T...

Full description

Saved in:
Bibliographic Details
Main Authors: Veronika Reichenberger, Maria Eduarda Lima de Carvalho, Tom Shakespeare, Shaffa Hameed, Tereza Maciel Lyra, Maria do Socorro Velo de Albuquerque, Loveday Penn-Kekana, Christina May Moran de Brito, Luciana Sepúlveda Köptcke, Hannah Kuper
Format: Article
Language:English
Published: Universidade de São Paulo 2024-10-01
Series:Revista de Saúde Pública
Subjects:
Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-89102024000100241&lng=en&tlng=en
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1846169858309357568
author Veronika Reichenberger
Maria Eduarda Lima de Carvalho
Tom Shakespeare
Shaffa Hameed
Tereza Maciel Lyra
Maria do Socorro Velo de Albuquerque
Loveday Penn-Kekana
Christina May Moran de Brito
Luciana Sepúlveda Köptcke
Hannah Kuper
author_facet Veronika Reichenberger
Maria Eduarda Lima de Carvalho
Tom Shakespeare
Shaffa Hameed
Tereza Maciel Lyra
Maria do Socorro Velo de Albuquerque
Loveday Penn-Kekana
Christina May Moran de Brito
Luciana Sepúlveda Köptcke
Hannah Kuper
author_sort Veronika Reichenberger
collection DOAJ
description ABSTRACT OBJECTIVE To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare. METHODS In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers. RESULTS Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access. CONCLUSION To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities.
format Article
id doaj-art-2d4e431186754853a18d58a8d589d764
institution Kabale University
issn 1518-8787
language English
publishDate 2024-10-01
publisher Universidade de São Paulo
record_format Article
series Revista de Saúde Pública
spelling doaj-art-2d4e431186754853a18d58a8d589d7642024-11-12T07:40:33ZengUniversidade de São PauloRevista de Saúde Pública1518-87872024-10-015810.11606/s1518-8787.2024058005842Access to primary healthcare services among adults with disabilities in BrazilVeronika Reichenbergerhttps://orcid.org/0000-0001-6778-2682Maria Eduarda Lima de Carvalhohttps://orcid.org/0000-0002-7610-1348Tom Shakespearehttps://orcid.org/0000-0003-2571-2787Shaffa Hameedhttps://orcid.org/0000-0003-2723-1709Tereza Maciel Lyrahttps://orcid.org/0000-0002-3600-7250Maria do Socorro Velo de Albuquerquehttps://orcid.org/0000-0002-1520-700XLoveday Penn-Kekanahttps://orcid.org/0000-0002-9758-4529Christina May Moran de Britohttps://orcid.org/0000-0003-3775-6533Luciana Sepúlveda Köptckehttps://orcid.org/0000-0001-7079-6575Hannah Kuperhttps://orcid.org/0000-0002-8952-0023ABSTRACT OBJECTIVE To investigate perspectives of people with disabilities in Brazil regarding the access to primary healthcare. METHODS In-depth interviews were conducted with 44 individuals with disabilities in Pernambuco, Distrito Federal, and São Paulo between March 2020 and November 2021. These interviews were transcribed, coded, and analysed thematically, using the Levesque framework to identify healthcare access barriers. RESULTS Participants expressed a solid understanding of their healthcare needs and existing obstacles. However, individuals with hearing and visual impairments experience challenges because of communication barriers. In Pernambuco, the Community Health Agent was often the initial point of contact for primary care services. Public transportation lacked accessibility, from buses to driver attitudes, posing difficulties for people with disabilities. More accessible transportation and improved urban infrastructure could enhance service access. High medication costs were reported due to limited healthcare unit availability. Communication accessibility issues, inadequate audio-visual resources and equipment were also identified as barriers. Attitudinal barriers among healthcare professionals and subpar home visit services further hinder access. CONCLUSION To address these challenges and improve the well-being of individuals with disabilities in Brazil, comprehensive action is essential. This includes leadership, governance, and resource allocation reforms to meet healthcare needs. Initiatives like disability-focused training for service providers, enhanced transportation options, improved information accessibility, and increased support from community healthcare workers can collectively enhance the lives of people with disabilities.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-89102024000100241&lng=en&tlng=enHealth Services AccessibilityHealth Services for Persons with DisabilitiesBarriers to Access of Health ServicesHealth Information Systems
spellingShingle Veronika Reichenberger
Maria Eduarda Lima de Carvalho
Tom Shakespeare
Shaffa Hameed
Tereza Maciel Lyra
Maria do Socorro Velo de Albuquerque
Loveday Penn-Kekana
Christina May Moran de Brito
Luciana Sepúlveda Köptcke
Hannah Kuper
Access to primary healthcare services among adults with disabilities in Brazil
Revista de Saúde Pública
Health Services Accessibility
Health Services for Persons with Disabilities
Barriers to Access of Health Services
Health Information Systems
title Access to primary healthcare services among adults with disabilities in Brazil
title_full Access to primary healthcare services among adults with disabilities in Brazil
title_fullStr Access to primary healthcare services among adults with disabilities in Brazil
title_full_unstemmed Access to primary healthcare services among adults with disabilities in Brazil
title_short Access to primary healthcare services among adults with disabilities in Brazil
title_sort access to primary healthcare services among adults with disabilities in brazil
topic Health Services Accessibility
Health Services for Persons with Disabilities
Barriers to Access of Health Services
Health Information Systems
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-89102024000100241&lng=en&tlng=en
work_keys_str_mv AT veronikareichenberger accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT mariaeduardalimadecarvalho accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT tomshakespeare accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT shaffahameed accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT terezamaciellyra accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT mariadosocorrovelodealbuquerque accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT lovedaypennkekana accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT christinamaymorandebrito accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT lucianasepulvedakoptcke accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil
AT hannahkuper accesstoprimaryhealthcareservicesamongadultswithdisabilitiesinbrazil