Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
Objective The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for r...
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BMJ Publishing Group
2020-11-01
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| Online Access: | https://bmjopen.bmj.com/content/10/11/e038859.full |
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| author | Rachael Wood Jane E Norman John Norrie Hilary Pinnock Queen Dube Harry Campbell Bridget Freyne Rebecca M Reynolds Beatrix von Wissmann Elizabeth Wastnedge Donald Waters Luis A Gadama Clemens Masesa Elizabeth Chodzaza Sarah Jane Stock Enita Makwakwa Catherine Bamuya Esmie Banda James Boardman Effie Chipeta Mia Crampin Sarah Cunningham Burley Jean Desire Kabamba Elizabeth Grant Caroline Hollins Martin Aisha Holloway Khondwhani Kawaza Doris Kayambo Corrine Love Brian Magowan Monica Malata Martha Masamba Fadhila Mazanderani Gladys Membe- Gadama Catherine Mkandawire Patricia Munthali Peter Mwaba Shakira Namisengo Everist Njelesani Linda Nyondo-Mipando Muriel Syacumpi Frank Taulo Alexandra Viner |
| author_facet | Rachael Wood Jane E Norman John Norrie Hilary Pinnock Queen Dube Harry Campbell Bridget Freyne Rebecca M Reynolds Beatrix von Wissmann Elizabeth Wastnedge Donald Waters Luis A Gadama Clemens Masesa Elizabeth Chodzaza Sarah Jane Stock Enita Makwakwa Catherine Bamuya Esmie Banda James Boardman Effie Chipeta Mia Crampin Sarah Cunningham Burley Jean Desire Kabamba Elizabeth Grant Caroline Hollins Martin Aisha Holloway Khondwhani Kawaza Doris Kayambo Corrine Love Brian Magowan Monica Malata Martha Masamba Fadhila Mazanderani Gladys Membe- Gadama Catherine Mkandawire Patricia Munthali Peter Mwaba Shakira Namisengo Everist Njelesani Linda Nyondo-Mipando Muriel Syacumpi Frank Taulo Alexandra Viner |
| author_sort | Rachael Wood |
| collection | DOAJ |
| description | Objective The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for routine data collection in healthcare facilities participating in DIPLOMATIC (initially in Malawi) were designed to assist understanding of baseline maternal and neonatal care processes and outcomes, and facilitate evaluation of improvement interventions and pragmatic clinical trials.Design Published and grey literature was reviewed alongside extensive in-country consultation to define relevant clinical best practice guidance, and the existing local data and reporting infrastructure, to identify requirements for the minimum datasets. Data elements were subjected to iterative rounds of consultation with topic experts in Malawi and Scotland, the relevant Malawian professional bodies and the Ministry of Health in Malawi to ensure relevance, validity and feasibility.Setting Antenatal, maternity and specialist neonatal care in Malawi.Results The resulting three minimum datasets cover the maternal and neonatal healthcare journey for antenatal, maternity and specialist neonatal care, with provision for effective linkage of records for mother/baby pairs. They can facilitate consistent, precise recording of relevant outcomes (stillbirths, preterm births, neonatal deaths), risk factors and key care processes.Conclusions Poor quality routine data on care processes and outcomes constrain healthcare system improvement. The datasets developed for implementation in DIPLOMATIC partner facilities reflect, and hence support delivery of, internationally agreed best practice for maternal and newborn care in low-income settings. Informed by extensive consultation, they are designed to integrate with existing local data infrastructure and reporting as well as meeting research data needs. This work provides a transferable example of strengthening data infrastructure to underpin a learning healthcare system approach in low-income settings.DIPLOMATIC is funded by the UK National Institute for Health Research. |
| format | Article |
| id | doaj-art-23b5c6ed00ca48f3a7c67debc201498c |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-11-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-23b5c6ed00ca48f3a7c67debc201498c2024-11-27T09:55:11ZengBMJ Publishing GroupBMJ Open2044-60552020-11-01101110.1136/bmjopen-2020-038859Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaborationRachael Wood0Jane E Norman1John Norrie2Hilary Pinnock3Queen Dube4Harry Campbell5Bridget Freyne6Rebecca M Reynolds7Beatrix von Wissmann8Elizabeth Wastnedge9Donald Waters10Luis A Gadama11Clemens Masesa12Elizabeth Chodzaza13Sarah Jane Stock14Enita Makwakwa15Catherine Bamuya16Esmie BandaJames BoardmanEffie ChipetaMia CrampinSarah Cunningham BurleyJean Desire KabambaElizabeth Grant17Caroline Hollins MartinAisha Holloway18Khondwhani KawazaDoris KayamboCorrine LoveBrian MagowanMonica MalataMartha MasambaFadhila MazanderaniGladys Membe- GadamaCatherine MkandawirePatricia MunthaliPeter MwabaShakira NamisengoEverist NjelesaniLinda Nyondo-MipandoMuriel SyacumpiFrank TauloAlexandra VinerPublic Health Scotland, Edinburgh, UKUniversity of Nottingham Executive Office, University of Nottingham, Nottingham, UKRobertson Centre for Biostatistics, University of Glasgow, Glasgow, UKAsthma UK Centre for Applied Research, Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UKPaediatric Department, University of Malawi College of Medicine, Blantyre, MalawiUnit of Cardiovascular and Nutritional Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Stockholm, SwedenClinical Infection, Microbiology and Immunology, University of Liverpool, Liverpool, UKCentre for Reproductive Health, University of Edinburgh, Edinburgh, UKInformation Services Division, NHS National Services Scotland, Edinburgh, UK1 The University of Edinburgh MRC Centre for Reproductive Health, Edinburgh, UKMRC Centre for Reproductive Health, The University of Edinburgh, Edinburgh, UKDepartment of Obstetrics and Gynaecology, University of Malawi College of Medicine, Blantyre, MalawiMalawi-Liverpool-Wellcome Trust Clinical Research Programme, Blantyre, MalawiFaculty of Midwifery, Neonatal and Reproductive Health Studies, University of Malawi Kamuzu College of Nursing, Blantyre, MalawiCentre for Medical Informatics, The University of Edinburgh Usher Institute of Population Health Sciences and Informatics, Edinburgh, UKMalawi Epidemiology and Intervention Research Unit, Lilongwe, MalawiMalawi Epidemiology and Intervention Research Unit, Lilongwe, MalawiUsher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK1 Nursing Studies, School of Health in Social Science, The University of Edinburgh, Edinburgh, UKObjective The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for routine data collection in healthcare facilities participating in DIPLOMATIC (initially in Malawi) were designed to assist understanding of baseline maternal and neonatal care processes and outcomes, and facilitate evaluation of improvement interventions and pragmatic clinical trials.Design Published and grey literature was reviewed alongside extensive in-country consultation to define relevant clinical best practice guidance, and the existing local data and reporting infrastructure, to identify requirements for the minimum datasets. Data elements were subjected to iterative rounds of consultation with topic experts in Malawi and Scotland, the relevant Malawian professional bodies and the Ministry of Health in Malawi to ensure relevance, validity and feasibility.Setting Antenatal, maternity and specialist neonatal care in Malawi.Results The resulting three minimum datasets cover the maternal and neonatal healthcare journey for antenatal, maternity and specialist neonatal care, with provision for effective linkage of records for mother/baby pairs. They can facilitate consistent, precise recording of relevant outcomes (stillbirths, preterm births, neonatal deaths), risk factors and key care processes.Conclusions Poor quality routine data on care processes and outcomes constrain healthcare system improvement. The datasets developed for implementation in DIPLOMATIC partner facilities reflect, and hence support delivery of, internationally agreed best practice for maternal and newborn care in low-income settings. Informed by extensive consultation, they are designed to integrate with existing local data infrastructure and reporting as well as meeting research data needs. This work provides a transferable example of strengthening data infrastructure to underpin a learning healthcare system approach in low-income settings.DIPLOMATIC is funded by the UK National Institute for Health Research.https://bmjopen.bmj.com/content/10/11/e038859.full |
| spellingShingle | Rachael Wood Jane E Norman John Norrie Hilary Pinnock Queen Dube Harry Campbell Bridget Freyne Rebecca M Reynolds Beatrix von Wissmann Elizabeth Wastnedge Donald Waters Luis A Gadama Clemens Masesa Elizabeth Chodzaza Sarah Jane Stock Enita Makwakwa Catherine Bamuya Esmie Banda James Boardman Effie Chipeta Mia Crampin Sarah Cunningham Burley Jean Desire Kabamba Elizabeth Grant Caroline Hollins Martin Aisha Holloway Khondwhani Kawaza Doris Kayambo Corrine Love Brian Magowan Monica Malata Martha Masamba Fadhila Mazanderani Gladys Membe- Gadama Catherine Mkandawire Patricia Munthali Peter Mwaba Shakira Namisengo Everist Njelesani Linda Nyondo-Mipando Muriel Syacumpi Frank Taulo Alexandra Viner Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration BMJ Open |
| title | Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration |
| title_full | Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration |
| title_fullStr | Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration |
| title_full_unstemmed | Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration |
| title_short | Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration |
| title_sort | informing prevention of stillbirth and preterm birth in malawi development of a minimum dataset for health facilities participating in the diplomatic collaboration |
| url | https://bmjopen.bmj.com/content/10/11/e038859.full |
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