Integration of patient-oriented research principles in health institutions: a scoping review protocol
Introduction In 2011, the Canadian Institutes of Health Research launched a Strategy for Patient-Oriented Research (POR) for healthcare and academic institutions to increase patient participation in health research. POR considers patients and caregivers as partners with scientific investigators, hea...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-12-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/12/e082729.full |
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| author | Marie-Ève Poitras Annie Leblanc Alèxe Deom Tardif Marie-Dominique Poirier Rachael Bosma Vanessa T.Vaillancourt Cloé Beaulieu Marie-Hélène Baron Daniel-Constantin Manolescu |
| author_facet | Marie-Ève Poitras Annie Leblanc Alèxe Deom Tardif Marie-Dominique Poirier Rachael Bosma Vanessa T.Vaillancourt Cloé Beaulieu Marie-Hélène Baron Daniel-Constantin Manolescu |
| author_sort | Marie-Ève Poitras |
| collection | DOAJ |
| description | Introduction In 2011, the Canadian Institutes of Health Research launched a Strategy for Patient-Oriented Research (POR) for healthcare and academic institutions to increase patient participation in health research. POR considers patients and caregivers as partners with scientific investigators, healthcare professionals and administrative decision-makers. As POR becomes a standard worldwide, the how-to, practical aspects of POR integration in healthcare institutions remain uncharted territory. A more accurate POR range in health research would improve healthcare systems. Yet the availability of standardised accreditation has not been achieved. The research question for this scoping review arose from a patient-partner in our team who experienced organisational challenges in healthcare institutions related to her role. It will overview and map the available evidence of organisational structures and changes that enable the integration of POR within healthcare institutions globally. This should serve our future projects to propose standardised pan-Canadian POR accreditation protocols.Methods and analysis Following Joanna Briggs Institute (JBI) methods and predetermined eligibility, we will perform a qualitative scoping review, searching for healthcare institution’s organisational structures and changes in Patient-Oriented Research (POR)-related accreditation, criteria and procedures in academic peer-reviewed databases and grey literature. The scoping review’s steps are as follows: (1) framing the research question; (2) targeting the documentation; (3) selecting documents by two reviewers; (4) charting/extracting data; (5) summarising and reporting the results. The search strategy will be applied to three databases for academic literature, and a search for grey literature will be performed. Emergent documents from academic studies or grey literature describing the organisational structure or changes to integrate POR within healthcare institutions, from 2012 to the present and in English or French, will be included. All articles will be analysed by two reviewers individually for inclusion. Extracted quantitative and qualitative data will describe eligible studies and POR-relevant elements. Tables mapping the organisational structures will be presented.Ethics and dissemination The methodology consists of exploring published evidence; therefore, ethics approval is not required. Patient-partners will provide feedback on findings and strategies for disseminating the results. Dissemination activities will include peer-reviewed publication, co-creation of teaching seminars and academic presentations.Trial registration number The review was registered prospectively with Open Science Framework (OSF). Available: https://osf.io/4t6ud. |
| format | Article |
| id | doaj-art-1d9a68925eda4ee2b2d3c9d644f942f0 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-1d9a68925eda4ee2b2d3c9d644f942f02024-12-16T17:00:09ZengBMJ Publishing GroupBMJ Open2044-60552024-12-01141210.1136/bmjopen-2023-082729Integration of patient-oriented research principles in health institutions: a scoping review protocolMarie-Ève Poitras0Annie Leblanc1Alèxe Deom Tardif2Marie-Dominique Poirier3Rachael Bosma4Vanessa T.Vaillancourt5Cloé Beaulieu6Marie-Hélène Baron7Daniel-Constantin Manolescu82 Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean du Québec, Chicoutimi, Québec, Canada4 Department of Family Medicine and Emergency Medicine, Université Laval Faculté de Médecine, Ville de Québec, Québec, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, Canada3 University of Toronto Faculty of Dentistry, Toronto, Ontario, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, Canada1 Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, Sherbrooke, Québec, CanadaIntroduction In 2011, the Canadian Institutes of Health Research launched a Strategy for Patient-Oriented Research (POR) for healthcare and academic institutions to increase patient participation in health research. POR considers patients and caregivers as partners with scientific investigators, healthcare professionals and administrative decision-makers. As POR becomes a standard worldwide, the how-to, practical aspects of POR integration in healthcare institutions remain uncharted territory. A more accurate POR range in health research would improve healthcare systems. Yet the availability of standardised accreditation has not been achieved. The research question for this scoping review arose from a patient-partner in our team who experienced organisational challenges in healthcare institutions related to her role. It will overview and map the available evidence of organisational structures and changes that enable the integration of POR within healthcare institutions globally. This should serve our future projects to propose standardised pan-Canadian POR accreditation protocols.Methods and analysis Following Joanna Briggs Institute (JBI) methods and predetermined eligibility, we will perform a qualitative scoping review, searching for healthcare institution’s organisational structures and changes in Patient-Oriented Research (POR)-related accreditation, criteria and procedures in academic peer-reviewed databases and grey literature. The scoping review’s steps are as follows: (1) framing the research question; (2) targeting the documentation; (3) selecting documents by two reviewers; (4) charting/extracting data; (5) summarising and reporting the results. The search strategy will be applied to three databases for academic literature, and a search for grey literature will be performed. Emergent documents from academic studies or grey literature describing the organisational structure or changes to integrate POR within healthcare institutions, from 2012 to the present and in English or French, will be included. All articles will be analysed by two reviewers individually for inclusion. Extracted quantitative and qualitative data will describe eligible studies and POR-relevant elements. Tables mapping the organisational structures will be presented.Ethics and dissemination The methodology consists of exploring published evidence; therefore, ethics approval is not required. Patient-partners will provide feedback on findings and strategies for disseminating the results. Dissemination activities will include peer-reviewed publication, co-creation of teaching seminars and academic presentations.Trial registration number The review was registered prospectively with Open Science Framework (OSF). Available: https://osf.io/4t6ud.https://bmjopen.bmj.com/content/14/12/e082729.full |
| spellingShingle | Marie-Ève Poitras Annie Leblanc Alèxe Deom Tardif Marie-Dominique Poirier Rachael Bosma Vanessa T.Vaillancourt Cloé Beaulieu Marie-Hélène Baron Daniel-Constantin Manolescu Integration of patient-oriented research principles in health institutions: a scoping review protocol BMJ Open |
| title | Integration of patient-oriented research principles in health institutions: a scoping review protocol |
| title_full | Integration of patient-oriented research principles in health institutions: a scoping review protocol |
| title_fullStr | Integration of patient-oriented research principles in health institutions: a scoping review protocol |
| title_full_unstemmed | Integration of patient-oriented research principles in health institutions: a scoping review protocol |
| title_short | Integration of patient-oriented research principles in health institutions: a scoping review protocol |
| title_sort | integration of patient oriented research principles in health institutions a scoping review protocol |
| url | https://bmjopen.bmj.com/content/14/12/e082729.full |
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