Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences
Objectives To explore the views of commissioners, service development leads, service managers and senior staff in selected dementia services on increasing the role of primary care in postdiagnostic support for people with dementia.Design Qualitative semi-structured telephone interviews and a focus g...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2020-09-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/9/e040348.full |
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| author | Louise Robinson Greta Rait Claire Bamford Jill Manthorpe Rachael Frost Jane Wilcock Karen Harrison Dening Martin Knapp Sube Banerjee Joy Adamson Alistair Burns Raphael Wittenberg Kate Walters Alison Wheatley Greta Brunskill Louise Allan Lynne Corner Donna Buxton Katherine Jacques Doug Lewins Sue Tucker |
| author_facet | Louise Robinson Greta Rait Claire Bamford Jill Manthorpe Rachael Frost Jane Wilcock Karen Harrison Dening Martin Knapp Sube Banerjee Joy Adamson Alistair Burns Raphael Wittenberg Kate Walters Alison Wheatley Greta Brunskill Louise Allan Lynne Corner Donna Buxton Katherine Jacques Doug Lewins Sue Tucker |
| collection | DOAJ |
| description | Objectives To explore the views of commissioners, service development leads, service managers and senior staff in selected dementia services on increasing the role of primary care in postdiagnostic support for people with dementia.Design Qualitative semi-structured telephone interviews and a focus group.Setting Participants were drawn from National Health Service (NHS) Clinical Commissioning Groups, social care commissioning and a range of dementia services across primary care, secondary mental healthcare, social care and the third sector. All participants were based in England or Wales.Participants 61 professionals, comprising 25 commissioners or service development leads; 25 service managers; and 11 team leads or senior staff.Results Participants had varied views on whether a primary care-based approach for postdiagnostic support for people with dementia and their families was appropriate, achievable and/or desirable. Potential benefits of a task-shifted approach were continuity and a more holistic approach to care; familiarity for both patients and staff; and reduction of stigma. Key challenges included the capacity, ability and inclination of primary care to deliver postdiagnostic support for people with dementia and their families. We discovered a number of conceptual challenges to implementing a task-shifted and task-shared approach, including uncertainties around the nature of postdiagnostic support, the definition of primary care and identification of tasks that could be shifted to primary care.Conclusions Our data highlight the concerns of key professional staff around greater involvement of primary care in postdiagnostic support for dementia. Further research is needed to achieve a shared understanding and consensus over what postdiagnostic support means in the context of dementia. We will be undertaking such research in the next phase of our programme. |
| format | Article |
| id | doaj-art-1c7f0d86ce4e4e39ba6d622281f20ee9 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-09-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-1c7f0d86ce4e4e39ba6d622281f20ee92025-01-06T14:50:08ZengBMJ Publishing GroupBMJ Open2044-60552020-09-0110910.1136/bmjopen-2020-040348Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences 0Louise Robinson1Greta Rait2Claire Bamford3Jill Manthorpe4Rachael Frost5Jane Wilcock6Karen Harrison Dening7Martin Knapp8Sube Banerjee9Joy Adamson10Alistair Burns11Raphael Wittenberg12Kate Walters13Alison Wheatley14Greta Brunskill15Louise Allan16Lynne Corner17Donna BuxtonKatherine JacquesDoug LewinsSue TuckerDepartment of Twin Research and Genetic Epidemiology, King`s College London, London, UK1 Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK1 Primary Care and Population Health, UCL, London, UKPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKNIHR Policy Research Unit in Health and Social Care Workforce, The Policy Institute at King’s, King`s College London, London, UK1 Research Department of Primary Care and Population Health, University College London, London, UKResearch Department of Primary Care & Population Health, UCL, London, UKSchool of Health & Life Sciences, De Montfort University, Leicester, UK1 Care Policy and Evaluation Centre, The London School of Economics and Political Science, London, UKOffice of Vice Chancellor, University of Plymouth, Plymouth, UKDepartment of Health Sciences, University of York, York, UKDivision of Neuroscience & Experimental Psychology, School of Biological Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester, UK1 Centre for Health Service Economics & Organisation, Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UKDepartment of Primary Care and Population Health, UCL Medical School (Royal Free Campus), London NW3 2PF, UKPopulation Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UKPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKDepartment of Health and Community Sciences, University of Exeter Medical School, Faculty of Health and Life Sciences, University of Exeter, Exeter, UKFaculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKObjectives To explore the views of commissioners, service development leads, service managers and senior staff in selected dementia services on increasing the role of primary care in postdiagnostic support for people with dementia.Design Qualitative semi-structured telephone interviews and a focus group.Setting Participants were drawn from National Health Service (NHS) Clinical Commissioning Groups, social care commissioning and a range of dementia services across primary care, secondary mental healthcare, social care and the third sector. All participants were based in England or Wales.Participants 61 professionals, comprising 25 commissioners or service development leads; 25 service managers; and 11 team leads or senior staff.Results Participants had varied views on whether a primary care-based approach for postdiagnostic support for people with dementia and their families was appropriate, achievable and/or desirable. Potential benefits of a task-shifted approach were continuity and a more holistic approach to care; familiarity for both patients and staff; and reduction of stigma. Key challenges included the capacity, ability and inclination of primary care to deliver postdiagnostic support for people with dementia and their families. We discovered a number of conceptual challenges to implementing a task-shifted and task-shared approach, including uncertainties around the nature of postdiagnostic support, the definition of primary care and identification of tasks that could be shifted to primary care.Conclusions Our data highlight the concerns of key professional staff around greater involvement of primary care in postdiagnostic support for dementia. Further research is needed to achieve a shared understanding and consensus over what postdiagnostic support means in the context of dementia. We will be undertaking such research in the next phase of our programme.https://bmjopen.bmj.com/content/10/9/e040348.full |
| spellingShingle | Louise Robinson Greta Rait Claire Bamford Jill Manthorpe Rachael Frost Jane Wilcock Karen Harrison Dening Martin Knapp Sube Banerjee Joy Adamson Alistair Burns Raphael Wittenberg Kate Walters Alison Wheatley Greta Brunskill Louise Allan Lynne Corner Donna Buxton Katherine Jacques Doug Lewins Sue Tucker Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences BMJ Open |
| title | Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences |
| title_full | Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences |
| title_fullStr | Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences |
| title_full_unstemmed | Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences |
| title_short | Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences |
| title_sort | task shifted approaches to postdiagnostic dementia support a qualitative study exploring professional views and experiences |
| url | https://bmjopen.bmj.com/content/10/9/e040348.full |
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