Burden and quality of life of informal caregivers of children with cerebral palsy

Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and...

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Main Authors: Abigail Oluwadunni Davis, Oladapo Michael Olagbegi, Kayode Orekoya, Mathew Adekunle, Olufemi Oyeleye Oyewole, Modinat Adepoju, Oluyemisi Soetan
Format: Article
Language:English
Published: Universidade Federal do Ceará 2021-05-01
Series:Rev Rene
Subjects:
Online Access:https://periodicos.ufc.br/rene/article/view/61752
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author Abigail Oluwadunni Davis
Oladapo Michael Olagbegi
Kayode Orekoya
Mathew Adekunle
Olufemi Oyeleye Oyewole
Modinat Adepoju
Oluyemisi Soetan
author_facet Abigail Oluwadunni Davis
Oladapo Michael Olagbegi
Kayode Orekoya
Mathew Adekunle
Olufemi Oyeleye Oyewole
Modinat Adepoju
Oluyemisi Soetan
author_sort Abigail Oluwadunni Davis
collection DOAJ
description Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.
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language English
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publisher Universidade Federal do Ceará
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spelling doaj-art-1064c0cfe02c4c7f8fc7b9840b61a35e2025-08-21T12:51:21ZengUniversidade Federal do CearáRev Rene1517-38522175-67832021-05-012210.15253/2175-6783.20212261752Burden and quality of life of informal caregivers of children with cerebral palsyAbigail Oluwadunni Davis0https://orcid.org/0000-0003-4753-8281Oladapo Michael Olagbegi1https://orcid.org/0000-0002-1320-7567Kayode Orekoya2https://orcid.org/0000-0003-3713-9172Mathew Adekunle3https://orcid.org/0000-0002-4579-9739Olufemi Oyeleye Oyewole4https://orcid.org/0000-0003-2432-247XModinat Adepoju5https://orcid.org/0000-0003-1748-4710Oluyemisi Soetan6https://orcid.org/0000-0002-9133-4852Federal Medical CentreUniversity of KwaZulu-NatalFederal Medical CentreFederal Medical CentreOlabisi Onabanjo University Teaching HospitalFederal Medical CentreFederal Medical Centre Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables. https://periodicos.ufc.br/rene/article/view/61752Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
spellingShingle Abigail Oluwadunni Davis
Oladapo Michael Olagbegi
Kayode Orekoya
Mathew Adekunle
Olufemi Oyeleye Oyewole
Modinat Adepoju
Oluyemisi Soetan
Burden and quality of life of informal caregivers of children with cerebral palsy
Rev Rene
Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
title Burden and quality of life of informal caregivers of children with cerebral palsy
title_full Burden and quality of life of informal caregivers of children with cerebral palsy
title_fullStr Burden and quality of life of informal caregivers of children with cerebral palsy
title_full_unstemmed Burden and quality of life of informal caregivers of children with cerebral palsy
title_short Burden and quality of life of informal caregivers of children with cerebral palsy
title_sort burden and quality of life of informal caregivers of children with cerebral palsy
topic Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
url https://periodicos.ufc.br/rene/article/view/61752
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