Data solidarity: Operationalising public value through a digital tool
Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact eve...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2025-12-01
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| Series: | Global Public Health |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/17441692.2025.2450403 |
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| author | Seliem El-Sayed Ilona Kickbusch Barbara Prainsack |
| author_facet | Seliem El-Sayed Ilona Kickbusch Barbara Prainsack |
| author_sort | Seliem El-Sayed |
| collection | DOAJ |
| description | Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be ‘taxed’ so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses. |
| format | Article |
| id | doaj-art-0a6e4e9ddeb64bf6b7a590ad8dde0ada |
| institution | Kabale University |
| issn | 1744-1692 1744-1706 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Global Public Health |
| spelling | doaj-art-0a6e4e9ddeb64bf6b7a590ad8dde0ada2025-01-10T08:35:15ZengTaylor & Francis GroupGlobal Public Health1744-16921744-17062025-12-0120110.1080/17441692.2025.2450403Data solidarity: Operationalising public value through a digital toolSeliem El-Sayed0Ilona Kickbusch1Barbara Prainsack2Department of Political Science, University of Vienna, Vienna, AustriaGlobal Health Centre, Institut de Hautes Etudes Internationales et du Developpement, Geneva, SwitzerlandDepartment of Political Science, University of Vienna, Vienna, AustriaMost data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be ‘taxed’ so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses.https://www.tandfonline.com/doi/10.1080/17441692.2025.2450403Data governancedata solidaritypublic valueequityfairnessSDG 3: Good health and well-being |
| spellingShingle | Seliem El-Sayed Ilona Kickbusch Barbara Prainsack Data solidarity: Operationalising public value through a digital tool Global Public Health Data governance data solidarity public value equity fairness SDG 3: Good health and well-being |
| title | Data solidarity: Operationalising public value through a digital tool |
| title_full | Data solidarity: Operationalising public value through a digital tool |
| title_fullStr | Data solidarity: Operationalising public value through a digital tool |
| title_full_unstemmed | Data solidarity: Operationalising public value through a digital tool |
| title_short | Data solidarity: Operationalising public value through a digital tool |
| title_sort | data solidarity operationalising public value through a digital tool |
| topic | Data governance data solidarity public value equity fairness SDG 3: Good health and well-being |
| url | https://www.tandfonline.com/doi/10.1080/17441692.2025.2450403 |
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