Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study

Background: Beta thalassemia is the most common genetic disorder in Pakistan. Thalassemia is a preventive disease a fact well demonstrated by countries such as Italy, Greece and Cyprus. Thalassemia prevention program especially prenatal diagnosis has been successfully introduced in Pakistan since 1...

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Main Author: Muhammad Usman
Format: Article
Language:English
Published: PAGEPress Publications 2014-08-01
Series:Mediterranean Journal of Hematology and Infectious Diseases
Subjects:
Online Access:https://mjhid.org/index.php/mjhid/article/view/1747
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author Muhammad Usman
author_facet Muhammad Usman
author_sort Muhammad Usman
collection DOAJ
description Background: Beta thalassemia is the most common genetic disorder in Pakistan. Thalassemia is a preventive disease a fact well demonstrated by countries such as Italy, Greece and Cyprus. Thalassemia prevention program especially prenatal diagnosis has been successfully introduced in Pakistan since 1994. Aims and Objectives: After completion of seventeen years of extensive thalassemia prevention program there is still no reduction in the rate of childbirth with transfusion dependent beta thalassemia. This study was designed to evaluate the role of social factor, lack of awareness about thalassemia in the propagation of beta thalassemia gene in Pakistan. Results: Results of social survey were analyzed by Usman & Moin thalassemia awareness chart that revealed profound unawareness about thalassemia in Pakistani population. Conclusion: This study identified lack of awareness as a major factor that playing a vital role in the propagation of beta thalassemia gene in Pakistan. To eradicate beta thalassemia major from Pakistan awareness about thalassemia in Pakistani population should be created.
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spelling doaj-art-046f14a1dda147c8b2ba24959a5965d52025-01-02T08:47:02ZengPAGEPress PublicationsMediterranean Journal of Hematology and Infectious Diseases2035-30062014-08-011Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population studyMuhammad Usman0Baqai Medical University karachi pakistanBackground: Beta thalassemia is the most common genetic disorder in Pakistan. Thalassemia is a preventive disease a fact well demonstrated by countries such as Italy, Greece and Cyprus. Thalassemia prevention program especially prenatal diagnosis has been successfully introduced in Pakistan since 1994. Aims and Objectives: After completion of seventeen years of extensive thalassemia prevention program there is still no reduction in the rate of childbirth with transfusion dependent beta thalassemia. This study was designed to evaluate the role of social factor, lack of awareness about thalassemia in the propagation of beta thalassemia gene in Pakistan. Results: Results of social survey were analyzed by Usman & Moin thalassemia awareness chart that revealed profound unawareness about thalassemia in Pakistani population. Conclusion: This study identified lack of awareness as a major factor that playing a vital role in the propagation of beta thalassemia gene in Pakistan. To eradicate beta thalassemia major from Pakistan awareness about thalassemia in Pakistani population should be created.https://mjhid.org/index.php/mjhid/article/view/1747Unawarenesspropagationbeta thalassemia
spellingShingle Muhammad Usman
Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
Mediterranean Journal of Hematology and Infectious Diseases
Unawareness
propagation
beta thalassemia
title Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
title_full Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
title_fullStr Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
title_full_unstemmed Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
title_short Lack of awareness about thalassemia; a social factor in the propagation of beta thalassemia gene in Pakistan: A population study
title_sort lack of awareness about thalassemia a social factor in the propagation of beta thalassemia gene in pakistan a population study
topic Unawareness
propagation
beta thalassemia
url https://mjhid.org/index.php/mjhid/article/view/1747
work_keys_str_mv AT muhammadusman lackofawarenessaboutthalassemiaasocialfactorinthepropagationofbetathalassemiageneinpakistanapopulationstudy