10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto
Abstract This Anaphylaxis Manifesto calls on communities to prioritise 10 practical actions to improve the lives of people at risk of serious allergic reactions. The Global Allergy and Asthma European Network and the European Federation of Allergy and Airways Diseases Patients' Associations (EF...
Saved in:
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2024-12-01
|
| Series: | Clinical and Translational Allergy |
| Subjects: | |
| Online Access: | https://doi.org/10.1002/clt2.70009 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1846106786310914048 |
|---|---|
| author | Antonella Muraro Debra de Silva Marcia Podesta Aikaterini Anagnostou Victoria Cardona Susanne Halken Pete Smith Luciana Kase Tanno Paul Turner Margitta Worm Montserrat Alvaro‐Lozano Stefania Arasi Anna Asarnoj Simona Barni Kirsten Beyer Lucy A. Bilaver Andrew Bird Roberta Bonaguro Helen A. Brough R. Sharon Chinthrajah Emma E. Cook Céline Demoulin Antoine Deschildre Timothy E. Dribin Motohiro Ebisawa Montserrat Fernandez‐Rivas Alessandro Fiocchi David M. Fleischer Eleanor Garrow Jennifer Gerdts Mattia Giovannini Kirsi M. Järvinen Mary Kelly Edward F. Knol Gideon Lack Francesca Lazzarotto Thuy‐My Le Stephanie Leonard Jay Lieberman Michael Makris Lianne Mandelbaum Mary Jane Marchisotto Gustavo Andres Marino Francesca Mori Caroline Nilsson Anna Nowak‐Wegrzyn Mikaela Odemyr H. N. G. Oude Elberink Kati Palosuo Nandinee Patel Jennifer Pier Sung Poblete Rima Rachid Pablo Rodríguez del Río Maria Said Hugh A. Sampson Angel Sánchez Sanz Sabine Schnadt Fallon Schultz Alice Toniolo Julia E. M. Upton Carina Venter Brian P. Vickery Berber Vlieg‐Boerstra Julie Wang Graham Roberts Torsten Zuberbier GA2LEN ANACare Centres and EFA |
| author_facet | Antonella Muraro Debra de Silva Marcia Podesta Aikaterini Anagnostou Victoria Cardona Susanne Halken Pete Smith Luciana Kase Tanno Paul Turner Margitta Worm Montserrat Alvaro‐Lozano Stefania Arasi Anna Asarnoj Simona Barni Kirsten Beyer Lucy A. Bilaver Andrew Bird Roberta Bonaguro Helen A. Brough R. Sharon Chinthrajah Emma E. Cook Céline Demoulin Antoine Deschildre Timothy E. Dribin Motohiro Ebisawa Montserrat Fernandez‐Rivas Alessandro Fiocchi David M. Fleischer Eleanor Garrow Jennifer Gerdts Mattia Giovannini Kirsi M. Järvinen Mary Kelly Edward F. Knol Gideon Lack Francesca Lazzarotto Thuy‐My Le Stephanie Leonard Jay Lieberman Michael Makris Lianne Mandelbaum Mary Jane Marchisotto Gustavo Andres Marino Francesca Mori Caroline Nilsson Anna Nowak‐Wegrzyn Mikaela Odemyr H. N. G. Oude Elberink Kati Palosuo Nandinee Patel Jennifer Pier Sung Poblete Rima Rachid Pablo Rodríguez del Río Maria Said Hugh A. Sampson Angel Sánchez Sanz Sabine Schnadt Fallon Schultz Alice Toniolo Julia E. M. Upton Carina Venter Brian P. Vickery Berber Vlieg‐Boerstra Julie Wang Graham Roberts Torsten Zuberbier GA2LEN ANACare Centres and EFA |
| author_sort | Antonella Muraro |
| collection | DOAJ |
| description | Abstract This Anaphylaxis Manifesto calls on communities to prioritise 10 practical actions to improve the lives of people at risk of serious allergic reactions. The Global Allergy and Asthma European Network and the European Federation of Allergy and Airways Diseases Patients' Associations (EFA) compiled patient‐centric priorities. We used qualitative consensus methods, research evidence and feedback from over 200 patient groups, stakeholder organisations and healthcare professionals. We encourage healthcare, education and food organisations to collaborate with people at risk of serious allergic reactions to tackle safety, anxiety and financial burdens for individuals and societies. Key priorities for prevention include awareness‐raising campaigns for the public and professionals, school and workplace initiatives and mandatory precautionary allergen labels on food. Priorities for improving immediate and long‐term management include educating healthcare professionals, patients and schools about when and how to use adrenaline, funding two approved adrenaline devices for everyone at risk, and facilitating access to allergy specialists. Integrated care pathways should include clinical and non‐clinical management options such as individualised risk assessment and quality of life assessment, self‐management plans, dietetic and psychosocial support and peer support. Organisations around the world are committing to work together towards these priorities. |
| format | Article |
| id | doaj-art-03efd545a27c4a30bb7f49d94337506d |
| institution | Kabale University |
| issn | 2045-7022 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Wiley |
| record_format | Article |
| series | Clinical and Translational Allergy |
| spelling | doaj-art-03efd545a27c4a30bb7f49d94337506d2024-12-27T07:32:28ZengWileyClinical and Translational Allergy2045-70222024-12-011412n/an/a10.1002/clt2.7000910 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis ManifestoAntonella Muraro0Debra de Silva1Marcia Podesta2Aikaterini Anagnostou3Victoria Cardona4Susanne Halken5Pete Smith6Luciana Kase Tanno7Paul Turner8Margitta Worm9Montserrat Alvaro‐Lozano10Stefania Arasi11Anna Asarnoj12Simona Barni13Kirsten Beyer14Lucy A. Bilaver15Andrew Bird16Roberta Bonaguro17Helen A. Brough18R. Sharon Chinthrajah19Emma E. Cook20Céline Demoulin21Antoine Deschildre22Timothy E. Dribin23Motohiro Ebisawa24Montserrat Fernandez‐Rivas25Alessandro Fiocchi26David M. Fleischer27Eleanor Garrow28Jennifer Gerdts29Mattia Giovannini30Kirsi M. Järvinen31Mary Kelly32Edward F. Knol33Gideon Lack34Francesca Lazzarotto35Thuy‐My Le36Stephanie Leonard37Jay Lieberman38Michael Makris39Lianne Mandelbaum40Mary Jane Marchisotto41Gustavo Andres Marino42Francesca Mori43Caroline Nilsson44Anna Nowak‐Wegrzyn45Mikaela Odemyr46H. N. G. Oude Elberink47Kati Palosuo48Nandinee Patel49Jennifer Pier50Sung Poblete51Rima Rachid52Pablo Rodríguez del Río53Maria Said54Hugh A. Sampson55Angel Sánchez Sanz56Sabine Schnadt57Fallon Schultz58Alice Toniolo59Julia E. M. Upton60Carina Venter61Brian P. Vickery62Berber Vlieg‐Boerstra63Julie Wang64Graham Roberts65Torsten Zuberbier66GA2LEN ANACare Centres and EFAPadua University Hospital Padua ItalyThe Evidence Centre London UKEuropean Federation of Allergy and Airways Diseases Patients' Associations Brussels BelgiumChildren's Hospital Houston Texas USAHospital Universitari Vall d'Hebron Barcelona SpainHans Christian Andersen Children's Hospital and University of Southern Denmark Odense DenmarkGriffith University Southport Queensland AustraliaHôpital Arnaud de Villeneuve ‐ University Hospital of Montpellier Montpellier FranceImperial College London London UKCharite Univeritätsmedizin Berlin Berlin GermanyHospital Sant Joan de Déu Barcelona SpainBambino Gesù Children's Hospital Rome ItalyAstrid Lindgren Children's Hospital Karolinska University Hospital Stockholm SwedenMeyer Children's Hospital IRCCS Florence ItalyCharite Univeritätsmedizin Berlin Berlin GermanyNorthwestern University Evanston Illinois USAUniversity of Texas Southwestern University Dallas Texas USAPadua University Hospital Padua ItalyGuy's and St Thomas' NHS Foundation Trust and King's College London London UKStanford University Stanford California USAATOPICCO Network for Children of the Earth Tokyo JapanAFPRAL Paris FranceUniversité de Lille Lille FranceCincinnati Children's Hospital Medical Center and University of Cincinnati Cincinnati Ohio USANHO Sagamihara National Hospital Sagamihara JapanHospital Clinico San Carlos Universidad Complutense IdISSC Madrid SpainPediatric Hospital Bambino Gesù Rome ItalyUniversity of Colorado and Children's Hospital Colorado Aurora Colorado USAFood Allergy and Anaphylaxis Connection Team West Chester Ohio USAFood Allergy Canada North York Ontario CanadaMeyer Children's Hospital IRCCS Florence ItalyUniversity of Rochester New York New York USAAnaphylaxis UK Farnborough UKUniversity Medical Center Utrecht Utrecht The NetherlandsGuy's and St Thomas' NHS Foundation Trust and King's College London London UKPadua University Hospital Padua ItalyUniversity Utrecht Utrecht The NetherlandsUniversity of California, San Diego La Jolla California USAUniversity of Tennessee Health Science Center and LeBonheur Children's Hospital Memphis Tennessee USANational and Kapodistrian University of Athens Athens GreeceNo Nut Traveler Inc Livingston New Jersey USAMJM Advisory LLC New York New York USAHospital Universitario Austral and Fundación SOS Alergia Pilar ArgentinaMeyer Children's Hospital IRCCS Florence ItalyKarolinska Institutet Stockholm SwedenNew York University New York New York USAAstma‐ och Allergiförbundet Stockholm SwedenUniversity of Groningen Groningen The NetherlandsHelsinki University Hospital Helsinki FinlandImperial College London London UKUniversity of Rochester Rochester New York USAFood Allergy Research & Education (FARE) McLean Virginia USABoston Children's Hospital Harvard Medical School Boston Massachusetts USAHospital Infantil Universitario Niño Jesús Madrid SpainAllergy & Anaphylaxis Australia Sydney New South Wales AustraliaIcahn School of Medicine at Mount Sinai New York New York USAAEPNAA Spanish Association of People with Food and Latex Allergy Madrid SpainDeutscher Allergie‐ und Asthmabund Berlin North Rhine‐Westphalia GermanyInternational FPIES Association Quincy Massachusetts USAPadua University Hospital Padua ItalyUniversity of Toronto Toronto Ontario CanadaUniversity of Colorado Denver Colorado USAEmory University School of Medicine and Children's Healthcare of Atlanta Atlanta Georgia USAOLVG Hospital Amsterdam The NetherlandsIcahn School of Medicine at Mount Sinai New York New York USAUniversity of Southampton Southampton UKCharite Univeritätsmedizin Berlin Berlin GermanyAbstract This Anaphylaxis Manifesto calls on communities to prioritise 10 practical actions to improve the lives of people at risk of serious allergic reactions. The Global Allergy and Asthma European Network and the European Federation of Allergy and Airways Diseases Patients' Associations (EFA) compiled patient‐centric priorities. We used qualitative consensus methods, research evidence and feedback from over 200 patient groups, stakeholder organisations and healthcare professionals. We encourage healthcare, education and food organisations to collaborate with people at risk of serious allergic reactions to tackle safety, anxiety and financial burdens for individuals and societies. Key priorities for prevention include awareness‐raising campaigns for the public and professionals, school and workplace initiatives and mandatory precautionary allergen labels on food. Priorities for improving immediate and long‐term management include educating healthcare professionals, patients and schools about when and how to use adrenaline, funding two approved adrenaline devices for everyone at risk, and facilitating access to allergy specialists. Integrated care pathways should include clinical and non‐clinical management options such as individualised risk assessment and quality of life assessment, self‐management plans, dietetic and psychosocial support and peer support. Organisations around the world are committing to work together towards these priorities.https://doi.org/10.1002/clt2.70009adrenalineallergyanaphylaxishypersensitivity |
| spellingShingle | Antonella Muraro Debra de Silva Marcia Podesta Aikaterini Anagnostou Victoria Cardona Susanne Halken Pete Smith Luciana Kase Tanno Paul Turner Margitta Worm Montserrat Alvaro‐Lozano Stefania Arasi Anna Asarnoj Simona Barni Kirsten Beyer Lucy A. Bilaver Andrew Bird Roberta Bonaguro Helen A. Brough R. Sharon Chinthrajah Emma E. Cook Céline Demoulin Antoine Deschildre Timothy E. Dribin Motohiro Ebisawa Montserrat Fernandez‐Rivas Alessandro Fiocchi David M. Fleischer Eleanor Garrow Jennifer Gerdts Mattia Giovannini Kirsi M. Järvinen Mary Kelly Edward F. Knol Gideon Lack Francesca Lazzarotto Thuy‐My Le Stephanie Leonard Jay Lieberman Michael Makris Lianne Mandelbaum Mary Jane Marchisotto Gustavo Andres Marino Francesca Mori Caroline Nilsson Anna Nowak‐Wegrzyn Mikaela Odemyr H. N. G. Oude Elberink Kati Palosuo Nandinee Patel Jennifer Pier Sung Poblete Rima Rachid Pablo Rodríguez del Río Maria Said Hugh A. Sampson Angel Sánchez Sanz Sabine Schnadt Fallon Schultz Alice Toniolo Julia E. M. Upton Carina Venter Brian P. Vickery Berber Vlieg‐Boerstra Julie Wang Graham Roberts Torsten Zuberbier GA2LEN ANACare Centres and EFA 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto Clinical and Translational Allergy adrenaline allergy anaphylaxis hypersensitivity |
| title | 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto |
| title_full | 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto |
| title_fullStr | 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto |
| title_full_unstemmed | 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto |
| title_short | 10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto |
| title_sort | 10 practical priorities to prevent and manage serious allergic reactions ga2len anacare and efa anaphylaxis manifesto |
| topic | adrenaline allergy anaphylaxis hypersensitivity |
| url | https://doi.org/10.1002/clt2.70009 |
| work_keys_str_mv | AT antonellamuraro 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT debradesilva 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT marciapodesta 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT aikaterinianagnostou 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT victoriacardona 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT susannehalken 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT petesmith 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT lucianakasetanno 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT paulturner 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT margittaworm 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT montserratalvarolozano 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT stefaniaarasi 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT annaasarnoj 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT simonabarni 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT kirstenbeyer 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT lucyabilaver 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT andrewbird 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT robertabonaguro 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT helenabrough 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT rsharonchinthrajah 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT emmaecook 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT celinedemoulin 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT antoinedeschildre 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT timothyedribin 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT motohiroebisawa 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT montserratfernandezrivas 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT alessandrofiocchi 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT davidmfleischer 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT eleanorgarrow 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT jennifergerdts 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT mattiagiovannini 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT kirsimjarvinen 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT marykelly 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT edwardfknol 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT gideonlack 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT francescalazzarotto 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT thuymyle 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT stephanieleonard 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT jaylieberman 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT michaelmakris 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT liannemandelbaum 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT maryjanemarchisotto 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT gustavoandresmarino 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT francescamori 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT carolinenilsson 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT annanowakwegrzyn 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT mikaelaodemyr 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT hngoudeelberink 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT katipalosuo 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT nandineepatel 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT jenniferpier 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT sungpoblete 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT rimarachid 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT pablorodriguezdelrio 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT mariasaid 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT hughasampson 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT angelsanchezsanz 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT sabineschnadt 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT fallonschultz 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT alicetoniolo 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT juliaemupton 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT carinaventer 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT brianpvickery 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT berbervliegboerstra 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT juliewang 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT grahamroberts 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT torstenzuberbier 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto AT ga2lenanacarecentresandefa 10practicalprioritiestopreventandmanageseriousallergicreactionsga2lenanacareandefaanaphylaxismanifesto |